Friday, April 30, 2010
Monday May 3rd
Our last fundraiser is Monday May 3rd at LA Cultures in Modesto, 2625 Coffee Rd. Last time the fundraiser was a huge success!!! Instead of 25% the owners of LA Cultures generously donated 100%!! So please come out and support us this Monday from 5-9, all you need to do is mention that you are there for the fundraiser!!! Peace and blessings, Peace and blessings.
Monday, April 19, 2010
Tonight...LA Cultures!!!
Just a reminder, we will be at LA Cultures frozen yogurt shop, 2625 Coffee Rd, from 5-9!! Come out and buy a frozen yogurt and 25% of your purchase will go to the Cystic Fibrosis Foundation! All you have to do is mention that you are there for "we walk for Hope". Also, we will have T Shirts available for $20!!! peace and blessings, hope to see you!!
Thursday, April 15, 2010
Our Next Fundraiser is....
MOnday April 19 we are having a fundraiser at LA Cultures in Modesto!! LA Cultures is a delicious frozen yogurt joint that has generously agreed to donate a percentage of each purchase from 5-9pm, with a "we walk for hope" flyer present! LA Cultures is located at 2625 Coffee Rd, at Floyd and Coffe....next to El Rosal ;-) I am still trying to figure out how to get the flyer attached to this blog so you can print it....so bear with me. love you guys!!!!
Saturday, April 10, 2010
Today was amazing!!
So today was the yard sale, our first fundraiser, and it was such a success. We made over $300 dollars to benefit the Cystic Fibrosis Foundation!!! We handed out flyers about our team and shared about CF. It was really neat to be able to share what we are doing and let people know about future fundraisers we will be having this month!! We finally have shirts available to purchase for $20 and it was so cool to be able to sell some of those today as well. This experience really made me excited to continue raising money and awareness!! peace and blessings. peace and blessings.
Thursday, April 8, 2010
A Word from Hope.....
Hey everyone this is Hope! I thought I would write a little something on here.
First of all I want to say thank you to everyone who is and is going to be apart of this walk. It means so much to me. And a HUGE thank you to the amazing Rachel Leonard! You are one of my dearest dearest friends, and this is truly the most amazing thing anyone has done for me. No words will ever express how much this all means to me. So thank you so very much, you are amazing.
Living with Cystic Fibrosis has been quite an adventure I guess you could say. When I was younger I was never really that sick, so I didn't take care of myself like I should have. I tried to ignore the fact that I had a serious disease, and I just wanted to be normal like everyone else. Finally when I was 15 I went into the hospital for my first of many yearly visits. I remember walking into the hospital with my pillow and my suitcase, thinking that this is now what is "normal" for my life. And I was so scared.
Since then I have been in the hospital every year for what they call a "CF tune-up", basically they just fill me up with meds and i do tons of breathing treatments and respiratory therapy. I don't really mind it anymore, because I know I need it and I can feel when I need it. This last time was the longest I was in, 2 weeks (which is actually normal). I usually feel so much better after the tune-up. But this last time I just didn't feel as good as I should have, and I knew something was wrong. Since then I have been into see my doctors and my lung function wasn't as good as it should be just getting out of the hospital. And I have been feeling weaker and weaker. Two weeks ago when I went in for my check up, he said they found a bacteria that they have been culturing and testing since I was in the hospital. The bacteria is called MAC (well thats the abbreviation, I don't know the medical name). I have had MAC before when I was 17, and I had to do 12 months of intensive treatment. They thought it was gone, but now they say it just went in remission. MAC is related to tuberculosis, but is not contagious. But it is a very serious and somewhat dangerous bacteria, because it attacks and destroys the lungs in a way that no other bacteria does. So finding this out it answered why I hadn't been feeling that good, and why my lung function has been decreasing. Now I have started treatment for this bacteria, and I will be doing the treatment for 12-18 months. This time they are pills, last time it was IV. So I am happy about that. So now I am taking 3 new antibiotics which is an extra 7 pills a day, which puts me at approximately 29 pills a day.
When the Doctor told me the culture for the bacteria was positive I felt very discouraged and beaten down, and part of me didn't feel like fighting anymore, because no matter how hard I fight or how many treatments I do, I still get sick, and will continue to get sicker and sicker. But then honestly I thought about all of you, and I thought about how hard you are all fighting for me, and that gave me strength and it gave me hope. I know I am not alone because I have each and everyone of you, and I have something to fight for. Your love and support is more then you guys can imagine. I feel so unworthy of all this, but I feel so grateful for it.
My life has been hard, but it has been so good. I have an amazing family. And I am married to the greatest guy in the world, who takes care of me and loves me for exactly who I am. And I have amazing friends who are always there for me, and who always make me laugh and make me love my life. I have been able to work and do things I love, and I have been to travel to the other side of the world twice. And even though my health is declining now, God has been very gracious to me and has blessed me, because there are so many CFers out there who suffer so much more then me, and some who have not had the chance to live the beautiful life that I have been able to live.
So again I say thank you. Thank you for fighting for me and for giving me a reason to fight. I love you all and I am so honored to have you walk by my side on the beautiful day of May 8th. :)
First of all I want to say thank you to everyone who is and is going to be apart of this walk. It means so much to me. And a HUGE thank you to the amazing Rachel Leonard! You are one of my dearest dearest friends, and this is truly the most amazing thing anyone has done for me. No words will ever express how much this all means to me. So thank you so very much, you are amazing.
Living with Cystic Fibrosis has been quite an adventure I guess you could say. When I was younger I was never really that sick, so I didn't take care of myself like I should have. I tried to ignore the fact that I had a serious disease, and I just wanted to be normal like everyone else. Finally when I was 15 I went into the hospital for my first of many yearly visits. I remember walking into the hospital with my pillow and my suitcase, thinking that this is now what is "normal" for my life. And I was so scared.
Since then I have been in the hospital every year for what they call a "CF tune-up", basically they just fill me up with meds and i do tons of breathing treatments and respiratory therapy. I don't really mind it anymore, because I know I need it and I can feel when I need it. This last time was the longest I was in, 2 weeks (which is actually normal). I usually feel so much better after the tune-up. But this last time I just didn't feel as good as I should have, and I knew something was wrong. Since then I have been into see my doctors and my lung function wasn't as good as it should be just getting out of the hospital. And I have been feeling weaker and weaker. Two weeks ago when I went in for my check up, he said they found a bacteria that they have been culturing and testing since I was in the hospital. The bacteria is called MAC (well thats the abbreviation, I don't know the medical name). I have had MAC before when I was 17, and I had to do 12 months of intensive treatment. They thought it was gone, but now they say it just went in remission. MAC is related to tuberculosis, but is not contagious. But it is a very serious and somewhat dangerous bacteria, because it attacks and destroys the lungs in a way that no other bacteria does. So finding this out it answered why I hadn't been feeling that good, and why my lung function has been decreasing. Now I have started treatment for this bacteria, and I will be doing the treatment for 12-18 months. This time they are pills, last time it was IV. So I am happy about that. So now I am taking 3 new antibiotics which is an extra 7 pills a day, which puts me at approximately 29 pills a day.
When the Doctor told me the culture for the bacteria was positive I felt very discouraged and beaten down, and part of me didn't feel like fighting anymore, because no matter how hard I fight or how many treatments I do, I still get sick, and will continue to get sicker and sicker. But then honestly I thought about all of you, and I thought about how hard you are all fighting for me, and that gave me strength and it gave me hope. I know I am not alone because I have each and everyone of you, and I have something to fight for. Your love and support is more then you guys can imagine. I feel so unworthy of all this, but I feel so grateful for it.
My life has been hard, but it has been so good. I have an amazing family. And I am married to the greatest guy in the world, who takes care of me and loves me for exactly who I am. And I have amazing friends who are always there for me, and who always make me laugh and make me love my life. I have been able to work and do things I love, and I have been to travel to the other side of the world twice. And even though my health is declining now, God has been very gracious to me and has blessed me, because there are so many CFers out there who suffer so much more then me, and some who have not had the chance to live the beautiful life that I have been able to live.
So again I say thank you. Thank you for fighting for me and for giving me a reason to fight. I love you all and I am so honored to have you walk by my side on the beautiful day of May 8th. :)
Wednesday, March 31, 2010
YARD SALE!!!
Okay everybody!! There is going to be a yard sale on April 10 and all the proceeds go the team "we walk for hope". If you have anything you want to donate or if you want to help or just come buy some stuff or just hang out......DO IT! If you are a part of our team your help would be amazing...making signs and pricing stuff the night before and the day of. It is going to be held at my house 804 Burke Ave Modesto CA!!! Let me know if you have any questions....peace and blessings peace and blessings!!!
Monday, March 22, 2010
Do you want to walk? Register...
....by April 1st!!! If you want to be a part of this walk let me know by replying to this post and you have to register at www.cff.org/great_strides select the team "we walk for hope" and register!! We are so excited to see who is going to walk and how many people we can educate about Cystic Fibrosis. Peace and blesssings. Peace and blessings.
Friday, March 19, 2010
Donate!
Its official! You can now make donations on this blog using the DONATE button at the top of the screen! I hope this is a useful tool in raising support far and wide! Please refer anyone to the blog if they want to make a donation. Much love!
Monday, March 15, 2010
$2.25
Today my 10 year old niece is the first person to donate to the We Walk for Hope team....probably the best $2.25 she will ever spend! I cannot express my excitement to see in her a desire to give. She is excited to start raising money too and is coming up with ideas on how she can! I love it and I encourage us all to find a way to raise money for this cause! So far we have a yard sale planned for April 10 and would love to take any donations you have! If you want to be a part of this team please email me at go9nz7o6@yahoo.com and register on www.cff.org under the team name We Walk for Hope. Peace and Blessings, Peace and Blessings.
Sunday, March 14, 2010
65 Roses
Here are some pics from last years event. Enjoy. Saturday the official evite was sent, I have included the message. I am so excited to see 18 confirmed guests. So much love to you all!!!
*************************************************************************************
Join our team...We Walk For Hope in the fight for a cure and raise awareness of Cystic Fibrosis.
As most of you know our friend Hope Joens has Cystic Fibrosis which is a genetic disease that effects her lungs and overall breathing system and digestive system. The CF body not only produces an excess amount of mucus but it also lacks the ability to move that mucus out of the body, and mucus that is left in the body can quickly turn into infection and even pneumonia. The CF body also lacks the enzymes needed to break down food. When your body doesn't actually digest your food you don't get the nutrients you need out of the food! Every CF patient experiences CF in a different way but for most, it effects their lungs. The infections that occur wear down and weaken the lungs. There still is no cure for CF, but in the recent years there have been many medical advancements. CF patients have to do 2-4 hours worth of breathing and airway clearance treatments a day to help upkeep their lungs and do manually what their body should be doing automatically. CF patients have a hard life but they all seem to have a love and appreciation for life that is unmatched. Every breath, every step, and every day is a gift that they cherish.
Last year about 20 of us participated in a fundraiser where we all got tattoos of "sixty fve roses" which is a common phrase used to help children with CF easily say Cystic Fibrosis. It was a blast to be able to particpate in such a great cause and I have been able to use my tattoo to tell more people about CF.
This year the opportunity to get involved in this fight is available to many more people. Great Strides is an organized walk for CF. All funds raised will directly go to the Cystic Fibrosis Foundation and will be used to raise awareness and find new treatments, medications and ultimately a cure.
If you want to particpate in this walk, we want you! Please email back with any questions and confirm your spot! Please confirm by March 31!! The only requirement for each walker is to purchase one "we walk for hope" t-shirt and try to sell one or more to a friend. This will be our main fundraising tool. If you have any ideas please post them.
Also, Hope and I have started a blog and will update it frequently about fundraising opportunities! www.wewalkforhope.blogspot.com
So much love! Peace and blessings, peace and blessings!
Rachel
*************************************************************************************
Join our team...We Walk For Hope in the fight for a cure and raise awareness of Cystic Fibrosis.
As most of you know our friend Hope Joens has Cystic Fibrosis which is a genetic disease that effects her lungs and overall breathing system and digestive system. The CF body not only produces an excess amount of mucus but it also lacks the ability to move that mucus out of the body, and mucus that is left in the body can quickly turn into infection and even pneumonia. The CF body also lacks the enzymes needed to break down food. When your body doesn't actually digest your food you don't get the nutrients you need out of the food! Every CF patient experiences CF in a different way but for most, it effects their lungs. The infections that occur wear down and weaken the lungs. There still is no cure for CF, but in the recent years there have been many medical advancements. CF patients have to do 2-4 hours worth of breathing and airway clearance treatments a day to help upkeep their lungs and do manually what their body should be doing automatically. CF patients have a hard life but they all seem to have a love and appreciation for life that is unmatched. Every breath, every step, and every day is a gift that they cherish.
Last year about 20 of us participated in a fundraiser where we all got tattoos of "sixty fve roses" which is a common phrase used to help children with CF easily say Cystic Fibrosis. It was a blast to be able to particpate in such a great cause and I have been able to use my tattoo to tell more people about CF.
This year the opportunity to get involved in this fight is available to many more people. Great Strides is an organized walk for CF. All funds raised will directly go to the Cystic Fibrosis Foundation and will be used to raise awareness and find new treatments, medications and ultimately a cure.
If you want to particpate in this walk, we want you! Please email back with any questions and confirm your spot! Please confirm by March 31!! The only requirement for each walker is to purchase one "we walk for hope" t-shirt and try to sell one or more to a friend. This will be our main fundraising tool. If you have any ideas please post them.
Also, Hope and I have started a blog and will update it frequently about fundraising opportunities! www.wewalkforhope.blogspot.com
So much love! Peace and blessings, peace and blessings!
Rachel
Saturday, March 6, 2010
whoohoo!!
Yesterday was such a great day! I am so excited to get started fundraising and getting a team together. I was able to brainstorm about t-shirt designs and yard sales and donations. man. I cant wait to get together people on this team and hear more ideas on how to raise awareness and money for CF! peace and blessings, peace and blessings.
Wednesday, March 3, 2010
We Walk For Hope
...hope for a cure for cystic fibrosis....we walk for hope joens, dear friend living with cystic fibrosis....we walk because we HAVE hope, ultimate hope in Jesus Christ, for deliverance from these earthly bodies, whatever our affliction may be. Let us join together to pray, to contribute, to walk!!! On May 8 at Modest Junior College we will walk in the Great Strides Walk. If you are interested, oh man, let me know!! You are wanted!! So much more info to come! peace and blessings, peace and blessings!
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